What It Will Take to Embrace Participatory Medicine: One Patient’s View

Kate Lorig


I have the honor of writing this introductory piece for The Journal of Participatory Medicine from the viewpoint of a patient. To do this I must drop my academic titles and replace them with my qualification for the task at hand. I was born with a rare genetic disease. In my six-plus decades of life I have acquired a few more chronic conditions and am still thriving, even after treatments for cancer. I experience an average of 30 or more encounters with the health care system each year and half that number with my insurers. In addition, during my academic career I have helped thousands of people participate in their care through the development of the Chronic Disease Self-Management Program, and I have learned much from their stories.

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Starting in September 2017, JoPM is published by JMIR Publications and papers should now be submitted at http://jopm.jmir.org/author/